Monday, July 6, 2009

Synvisc--The Suffering Minority

A forum poster recently said that you only hear from those who had a bad reaction to a drug or medical device on forums and blogs, and that the percentage of those who react are actually small.

There's some truth to what this person posted in regards to many drugs and medical devices, but I often wonder how many of the mysterious conditions today are contributed to the use of prescriptions, and are never connceted. And another troubling thing about their statement...they wrote it in a way to minimize those who seek help for terrible reactions to a drug or medical device. Through my own experience, the medical doctors administering the drug or device are of NO help, especially if it's prolonged or out of the box.

In the case of Synivsc, there's no proven way to extract the gel/liquid from the body or a known remedy in the books. They don't know the systemic half-life of Synvisc, or its metabolic pathway once it leaves the knee joint...thanks to the FDA Medical Device classification, which does not require such. So where can people who suffer find help, advice and know that they are NOT alone?

Most people invested in making money off a product are only concerned about their bottom line...not the good of the patient. [I know that statement is not true for all physicians. However, it is true for all of us who I'm in contact with who reacted to Synvisc. The FDA, Genzyme and our physicians dismissed us, and left us to fend for our own lives. That's the real bottom line you should consider... You're on your on if somethine goes array.]

I wonder if this person would minimize such reactions and reports of reactions if the drug or medical device had destroyed their health, almost killed them, or did the same to someone they love.

So I say to all of you who are suffering from a product the FDA deemed safe, keep reporting!!

How do you know if you're going to be one of the suffering minority or not?

AND do you really want toxic substances to permeate your body and add to your toxic load?

Why take the risk when there are other options without?

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